Living with ankylosing spondylitis means waking up every day unsure of how much pain, stiffness, and exhaustion will shape my hours. Some days, it’s manageable. Other days, it feels like my body is locked in place, heavy with fatigue, aching in ways I can’t explain. It’s relentless, unpredictable, and exhausting.
But today, I’m feeling gratitude—gratitude for Cosentyx, the biologic injection that helps me move, function, and hold onto a life that isn’t defined solely by pain. I won’t lie—I hate needles. Every injection is a mental battle, but it’s one I’d rather fight than let AS take over completely. Without these injections, the chronic pain would win.
I know how incredibly lucky I am to have benefits that help cover the sky-high costs of this medication. So many people don’t have access to treatments that could give them relief, and that’s not fair. Healthcare should be a right, not a privilege.
Chronic illness is hard. It wears you down, reshapes your identity, and demands more from you than you ever thought possible. But today, in this moment, I’m choosing to focus on what helps—modern medicine, a strong support system, and the stubborn hope that tomorrow might be just a little bit easier.
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Kali J Desautels 
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